Transforming care for people with learning disabilities and/or autism

We want to transform care and improve services for people with a learning disability and/or autism who display behaviour that challenges and those with a mental health condition.

Our aim is to ensure that care for children and adults is high quality and safe, and that service users, their families and carers have a good experience of services. We want to support people to live rewarding and fulfilling lives in the community and prevent the need for long-term hospital care.

Islington Clinical Commissioning Group (CCG) and the other North Central London CCGs have set up a partnership to transform care across this area of London – Islington, Barnet, Enfield, Camden and Haringey. The North Central London Transforming Care Partnership also includes all the local authorities in the five boroughs. Islington CCG is leading on this work on behalf of all the boroughs.

We have set up a Transforming Care Partnership Board and Implementation Group to oversee delivery of this work. Click here to see the governance structure. The programme has developed and is now implementing a plan to achieve the vision and objectives set out in the Department of Health’s guidance: Building the Right Support. This national guidance is supported by a new service model across health and care that defines what good services should look like.

The programme will focus on addressing long-standing issues to ensure sustainable change that will see:

  • more choice for people and their families, and more say in their care
  • more support to families and carers to sustain their caring arrangements
  • more care provided in the community, with personalised support provided by multi-disciplinary health and care teams
  • more innovative services to give people a range of care options, using personalised approaches, so that care meets individuals’ needs
  • more early intensive support provided for those who need it, so they can stay in the community, close to home
  • for those needing in-patient care, ensuring it is only for as long as they need it
  • education services supporting young people to develop their independence and skills
  • the development of local resources so fewer people are placed and/or educated outside of the area where they live
  • fewer young people and adults admitted to hospital

What are we doing?

The 2018/19 plan for North Central London is being developed in line with NHS England’s Building the Right Support guidance. A copy of the plan will be available to view here once it has been completed.

In summary, we will be looking at:

  • commissioning services that prevent crisis and hospital admission, such as family support, crisis intervention and positive behaviour support
  • improving our discharge planning processes by learning from good practice and implementing it in north central London
  • developing the workforce, making sure staff have the right training and skills to better support people and their carers
  • increasing people’s choice and control in the way their care is delivered by using personal health budgets, personal budgets and direct payments
  • improving housing options
  • working with organisations and providers to ensure there are high quality local services
  • making sure we have really good contracts, in particular with hospitals and service providers, so that people using them are kept safe and that their needs are met
  • making sure services for children, adults and young people are joined up, so that people get the right support
  • making sure people have access to information, advice, guidance and support at the right time and in the right place
  • improving processes for pre-admission care and treatment reviews and admission prevention registers so that professionals are identifying those at risk early enough to think about alternatives to admission.
  • developing local resources so that fewer people are placed and/or educated outside of the area where they live
  • we aim to reduce our use of hospital beds to care for people with learning disabilities and/or autism by 50% by March 2018 in line with the ambitions set out in Building the Right Support.

Involving people in developing and delivering our plans

We are committed to involving users and carers. We have spoken to people and their families, as well as professionals and service providers to understand the challenges they face. This information has been used to develop our plans. We have parent and carer representatives who sit on our board, shaping our plans and helping make decisions. We will continue to talk all those with an interest to help us co-design and deliver the plan.

More information

If you would like more information about what we are doing as part of the transforming care programme, please contact us.